Members of the Center

Since 2016 I have conducted anthropological research on rare (metabolic) diseases in Finland and Poland as the Principal Investigator of two projects: “Socio-cultural dimensions of rare diseases: The case of LCHAD deficiency. A comparative study of Poland and Finland” (2016-2019), and “An Anthropology of Rare Diseases. A Study of the Baltic Sea Region” (2018-2022). I studied in the College of >>>

Filip Rogalski

Assistant Professor, post-doc

Ethnologist and cultural anthropologist. He studied ethnology and anthropology at the Adam Mickiewicz University in Poznan, Autònoma University in Barcelona and École des hautes études en sciences sociales in Paris. In 2016 he defended doctoral thesis Animizm, perspektywizm i sprawczość u ludu Arabela z Amazonii peruwiańskiej ["Animism, perspectivism and agency among the Arabela from the Peruvian Amazonia"] (UAM, Poznań). Conducted >>>

Jan Frydrych

PhD student at the University of Warsaw

Graduate of Cultural Studies at the University of Warsaw. Ph.D. student at the Section for Contemporary Culture at the Institute of Polish Culture, Warsaw University. Member of the Section for Culture Animation. His main research area is medical anthropology. In his M.A. thesis he examines the experience of suffering from chronic diseases. In his Ph.D. research he focuses on Polish >>>

Katarzyna Ewa Król

PhD student at the GSSR

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Collaborating Researchers

Anna Kwaśniewska

Associate Professor

Ethnologist and Associate Professor in the Institute of Archeology and Ethnology at the University of Gdańsk, Poland. She is the author of two books and numerous articles on the Kashubian and Pomerania regions, specifically on non-material cultural heritage, coastal Kashubian fisheries, and cultural transformation. She was the PI of the project titled Non-material Cultural Heritage of the Eastern Pomerania (2013-2017); >>>

In 2015 she graduated from Ethnology and Cultural Anthropology at the University of Warsaw, where she defended her master’s thesis: “Down Syndrome. Mothers’ Experience and Negotiations with Modernity”, supervised by dr Magdalena Rwadkowska-Walkowicz. The thesis received an Jan Józef Lipski Award (Open Republic Association). Since 2016 she is a PhD student at the Institute of Ethnology and Anthropology at the >>>

Ewa Ehmke vel Emczyńska-Seliga

Dietitian, Division of Pediatrics, Nutrition and Metabolic Disorders, Children’s Memorial Health Institute, Warsaw

Medical University of Warsaw graduate (master of dietetics and PhD student in The Health Science Department). Dietetic in the Department of Pediatrics, Nutrition and Metabolic Diseases, the Children’s Memorial Health Institute in Warsaw (Poland). Specialist in pediatric dietetics and nutrition in inborn errors of metabolism (certified Polish and foreign courses) – low and very low protein diets, low fat diets, >>>

Maria Libura

Head of Medical Training and Simulation Centre, University of Warmia and Mazury in Olsztyn

Maria Libura is the Head of Medical Training and Simulation Centre, University of Warmia and Mazury in Olsztyn. She is a founding member and vice president of the Polish Society for Medical Communication, a healthcare expert of the Jagiellonian Club Analytical Centre, and a former Fulbrighter. For the past fifteen years she has been involved in the rare disease movement >>>