Members of the Center

Małgorzata Rajtar

Associate Professor, Institute of Philosophy and Sociology of the Polish Academy of Sciences

Since 2016 I have conducted anthropological research on rare (metabolic) diseases in Finland and Poland as the Principal Investigator of two projects: “Socio-cultural dimensions of rare diseases: The case of LCHAD deficiency. A comparative study of Poland and Finland” (2016-2019), and “An Anthropology of Rare Diseases. A Study of the Baltic Sea Region” (2018-2022). I studied in the College of >>>

Jan Frydrych

PhD student at the University of Warsaw

Graduate of Cultural Studies at the University of Warsaw. Ph.D. student at the Section for Contemporary Culture at the Institute of Polish Culture, Warsaw University. His main research area is medical anthropology, anthropology of death and dying, and disability studies. In his M.A. thesis he examines the experience of suffering from chronic diseases. In his Ph.D. research he focuses on >>>

Katarzyna Ewa Król is a cultural anthropologist and sociologist; she is currently a PhD student at the Graduate School for Social Research at the Institute of Philosophy and Sociology, Polish Academy of Sciences, where she works on a dissertation "Knowledge production and biomedical cultures within rare diseases in Poland". Co-convenor of the Rare Disease Social Research Center (RDSRC) at the Institute of Philosophy >>>

Baris Kamyab Muhammedrezai

PhD student at the GSSR

I finished medical school in 2021 and worked for a brief time as a General Practitioner in Istanbul. I also had the chance to work in a closed penitentiary in Istanbul for some time where I was tasked with taking care of patients with different types of psychiatric diseases. In 2022 I started working on my PhD project titled “The >>>

Absolwentka kulturoznawstwa w ramach Międzywydziałowych Indywidualnych Studiów Humanistycznych na Uniwersytecie Warszawskim oraz global studies na Uniwersytecie Humboldtów w Berlinie oraz Jawaharlal Nehru University w New Delhi. Jej głównymi obszarami zainteresowań są antropologia i socjologia psychiatrii i medycyny, psychiatria i psychologia krytyczna, socjologia wiedzy, socjologia i antropologia ciała oraz studia nad nauką i technologią.  W ramach doktoratu prowadzi badania nad doświadczeniem >>>

Collaborating Researchers

Anna Kwaśniewska

Associate Professor

Ethnologist and Associate Professor in the Institute of Archeology and Ethnology at the University of Gdańsk, Poland. She is the author of two books and numerous articles on the Kashubian and Pomerania regions, specifically on non-material cultural heritage, coastal Kashubian fisheries, and cultural transformation. She was the PI of the project titled Non-material Cultural Heritage of the Eastern Pomerania (2013-2017); >>>

Agnieszka Wołowicz

Assistant Profesor at the University of Warsaw

I work at the University of Warsaw, where I conduct research in feminist disability studies. My research interests include topics related to violence against women with disabilities and access to reproductive rights of this group. I also look at methodological and ethical challenges around participatory research involving people with intellectual disabilities. I am an expert in non-governmental organizations working for >>>

Anna Chowaniec

Center for Bioethics and Biolaw, University of Warsaw

In 2015 she graduated from Ethnology and Cultural Anthropology at the University of Warsaw, where she defended her master’s thesis: “Down Syndrome. Mothers’ Experience and Negotiations with Modernity”, supervised by dr Magdalena Rwadkowska-Walkowicz. The thesis received an Jan Józef Lipski Award (Open Republic Association). Since 2016 she is a PhD student at the Institute of Ethnology and Anthropology at the >>>

Ewa Ehmke vel Emczyńska-Seliga

Dietitian, Division of Pediatrics, Nutrition and Metabolic Disorders, Children’s Memorial Health Institute, Warsaw

Medical University of Warsaw graduate (PhD). Dietetic in the Department of Pediatrics, Nutrition and Metabolic Diseases, the Children’s Memorial Health Institute in Warsaw (Poland). Specialist in pediatric dietetics and nutrition in inborn errors of metabolism (certified Polish and foreign courses) – low and very low protein diets, low fat diets, high protein and low carbohydrates diets, ketogenic diets. Lecturer at >>>

Eva-Maria Knoll

Senior Researcher, Institute for Social Anthropology of the Austrian Academy of Sciences

Medical anthropologist with a research focus on medical anthropology at the intersections with life sciences, health-related mobility, tourism and island studies in the Indian Ocean World, with special expertise in the Maldives and their history. Currently she studies natural and man-made crisis and the biosocial impact of  endemic inherited blood disorders (noteably thalassaemias and sickle cell disease) and associated questions >>>

Ethnologist and cultural anthropologist. He studied ethnology and anthropology at the Adam Mickiewicz University in Poznan, Autònoma University in Barcelona and École des hautes études en sciences sociales in Paris. In 2016 he defended doctoral thesis Animizm, perspektywizm i sprawczość u ludu Arabela z Amazonii peruwiańskiej ["Animism, perspectivism and agency among the Arabela from the Peruvian Amazonia"] (UAM, Poznań). Conducted >>>

Maria Libura

Head of Medical Training and Simulation Centre, University of Warmia and Mazury in Olsztyn

Maria Libura is the Head of Medical Training and Simulation Centre, University of Warmia and Mazury in Olsztyn. She is a founding member and vice president of the Polish Society for Medical Communication, a healthcare expert of the Jagiellonian Club Analytical Centre, and a former Fulbrighter. For the past fifteen years she has been involved in the rare disease movement >>>