Transition in Rare Diseases

This lecture series is organized by the RDSRC as a part of a joint project entitled “Transition in Rare Diseases” between the Polish Academy of Sciences and the Austrian Academy of Sciences (2024-2026, Co-PIs: M. Rajtar and Eva-Maria Knoll/ISA AAS). Lectures are offered online. To participate, please contact Małgorzata Rajtar at mrajtar@ifispan.edu.pl  

Forthcoming lecture

24.03.2026 – Samiksha Bhan (PhD Candidate, Max Planck Institute for Social Anthropology), Dis/abling cure: Medical humanitarianism and the transition from management to therapy for Thalassemia-affected in India.

Previous lectures

6.11.2025 – Prof. Dr. Anika König (Institute of Social and Cultural Anthropology, Freie Universität Berlin), From Expert Patients to Patient Detectives: People with Rare Diseases’ Involvement in the Production of Medical Knowledge.

3.06.2025 – Dr. med. Ursula Unterberger (Orphanet Austria, Medical University Vienna), Rare Diseases in Austria.

20.02.2025 – Dr Caroline Culen (Austrian League for Child and Adolescent Health), Lost in Transition – Young people in transition from paediatrics to adult medicine.